Monday, July 23, 2007

Welcome

Welcome to our new home - yours and mine. As many of you know, Mort Diamond and I co-wrote a blog at http://www.lymphomainnovations.com until this week when the grant which supported it on Healthology's website was not renewed. I'm told that the site will stay up so that you can refer back to it should you wish.

For more than a year, Mort and I wrote extensively about our experiences with lymphoma and the two drugs, Bexxar and Zevalin, which belong to a relatively new class of medicine called radioimmunotherapy (RIT), which saved both our lives, but which have been slow to find acceptance in the medical community. Many of our readers shared their personal stories with us and told us how helpful it was to communicate with others who had experienced the same illness. Connecting with so many of our fellow patients was deeply meaningful for Mort and me, and we simply couldn't abandon the hundreds of readers who regularly read our previous blog.

And so I frantically searched for a new home this past weekend which was not an easy task. Despite all the drugs I took during my illness, not a single one improved my technical skills, a side effect I would have gladly welcomed. Alas, I remain technically challenged but with help, managed to get this site up and running. For now, it's in my name, although I suspect that Mort will weigh in with his valuable comments. We'll figure that out in the coming days and weeks. In the meantime, I assure all of you that we are still here - and as always, we invite you to share your comments, questions or concerns.

Whew! Like all moves, this one was hectic. I'm just glad there was a way to stay connected with all of you and I look forward to hearing from you.

Betsy

4 comments:

Melissa Young said...

I just had to laugh! I found this blog on the very day that the old one shut down! I received lymphoma diagnosis (by Bone Marrow Biopsy) six months ago and am now receiving Rituxan+maintenance.I was actually excited to get the diagnosis because for a year previously after the first BMB my tentative diagnosis had been myelofibrosis which has all the same symptoms but few treatment options. With Rituxan my hemoglobin has gone from 7.1 to 13.5 in four months, so I am grateful. Still interested in what others are doing and feeling, so I will check in often.

Cory-Jeanne said...

Thank you Betsy for the new blog site.
Hugs back
Cory-Jeanne

Judy said...

I am excited to find this site.
I am age 54 DX june 06.
I live in Kentucky and am undergoing Rituxan in Nashville,TN. Every 6 months for 2 years.
My Oncologist only gave me 2 choices. WW or Rituxan.
I will see my Doctor August 16th. for routine blood work. My next Rituxan treatment is in October.
Although I am doing well and have had no side effects I will discuss with him RIT on my next visit.

Annemie van Rijen said...

Congratulations Betty,
I wish you all the luck with your new Blog.
Lots of love and take care.
Annemie (The Netherlands)